Supporting Caregivers: Remember to Care for Yourself, Too

Megan Ayles, LMSW, a senior social worker with UR Medicine’s Memory Care program, offers some helpful tips for caregivers who might be feeling overwhelmed:

1. Find support groups near you
2. Know the symptoms of caregiver stress
3. Beat caregiver burnout with strong boundaries
4. Take a break
5. Accept changes as they come

1. Find Support Groups Near You

Finding a nearby caregiver support group can help you connect with others who are going through similar experiences. You’ll gain emotional support, learn new caregiving strategies, and feel less isolated.

• Cancer Caregivers Group
• Caregiver Support and Resources
• Caregiver Resource Center at Noyes
  
  

For virtual support, think about joining online communities like ALZConnected. This site offers a safe space for caregivers to share their experiences and find encouragement.

2. Know The Symptoms of Caregiver Stress

Caregiver stress is real, and it can manifest in both physical and behavioral ways. It’s crucial to recognize signs early and seek help when needed.

Physical symptoms include:

• Blurred vision
• Stomach irritation
• High blood pressure
  
  

Behavioral signs include:

• Irritability
• Difficulty concentrating
• Change in appetite
  
  

If you're noticing any of these symptoms, it's time to listen to your body and prioritize your health. Practicing relaxation techniques like deep breathing, meditation, or even a short walk can make a meaningful difference. And if you need more help, your primary care provider is the perfect resource to help you feel better.

Caregiver Burnout vs. Compassion Fatigue: What’s The Difference?

While caregiver burnout and compassion fatigue may seem similar, they are distinct challenges faced by caregivers.

Caregiver burnout occurs gradually, often the result of chronic stress and feeling overwhelmed by caregiving duties. It can lead to emotional exhaustion, detachment, and a decreased sense of personal accomplishment.

Compassion fatigue tends to develop more suddenly, usually after exposure to traumatic events or witnessing the suffering of others over time. While burnout stems from long-term strain, compassion fatigue is often described as the "cost of caring," resulting in a diminished ability to empathize.

3. Beat Caregiver Burnout with Strong Boundaries

When caring for a loved one, especially someone with dementia or Alzheimer's, it's easy to feel like you're constantly battling uncontrollable behaviors. You can’t change the progression of the disease, but you can control how you respond to it.

“Grieve the losses, focus on the positive moments, and cherish the good memories,” Ayles says.

Caregiver guilt is a common feeling, especially when you think you could be doing more. But it's important to remember that you're doing the best you can.

4. Take a Break

It’s normal to need time off from caregiving duties. Taking regular breaks is essential to maintaining your well-being. Look into respite care services or ask family and friends to step in when you need to rest.

No one can do it all alone, and it’s perfectly okay to ask for help.

When you take breaks, choose activities that help you recharge. This could be going for a walk, doing yoga, or enjoying a favorite hobby. If your loved one has advanced Alzheimer's or cancer, residential care options, like nursing homes, might help them receive the best care possible.

5. Accept Changes as They Come: Caregiving for Conditions Like Alzheimer’s and Cancer

Conditions like Alzheimer's and cancer are progressive, meaning your loved one’s needs will change over time. Ayles notes that accepting these changes is one of the most important things a caregiver can do. “Becoming aware of community resources and available care options can make transitions easier,” she says.

Remember that it’s impossible to predict everything. You may not be able to control every aspect of care, but you can ensure your loved one is safe and well cared for. Remember that every effort you make has a positive impact, even if it might not feel that way sometimes.

Caring for a loved one can be fulfilling, but it also brings its own set of challenges. Whether you're feeling burnt out, are stressed, or are considering alternative care options, remember that you're not alone. Reach out for help, take care of your health, and find comfort in knowing you’re making a positive difference in your loved one’s life.